Sofia Levin

Why AM I fundraising

My dad, my everything, died from MND on 8 July this year. He was diagnosed 2.5 years earlier. Prior to his diagnosis I knew very little about this incurable disease, but people are slowly hearing more about it. It's no coincidence every day in Australia, two people are diagnosed with MND and two people die from it. There is no cure. Our family would have been utterly lost without the support of MND Victoria. We know first-hand how important this organisation is, which is why I'm choosing to shut up for 12 hours, to raise money and awareness for the cause. Dad's birthday falls during Shut Up for MND week. He would have been 66. I'll miss him laughing at us trying not to talk this year.